Tuesday, February 8, 2011



At work, a small white tablet was found straggling around in my purse.  I heard angel choirs chanting not too far off this multi-dimensional realm.  I split the porcelain little helper in two.  Even before popping the first half, the placebo effect of the hope that was to come was already melting troubles away like lemon drop shots.

All these mornings have been groundhog-ish.  I had an interruption in my regular treatment for the 'wolf disease', and so the inflammation and pain came back with a vengeance.  With permission from a doctor's note, I have stumbled into work late almost every day in the last two weeks.  When I pry my dessert-dry eyes open in the morning, while blood is trashing around in my skull, I begin the process of gauging my pain levels.  Neck: Stiff.  Hips: swollen.  Feet: extra swollen.  Back: stabbing.  Elbows: Stuck. Wrist and Fingers: numb.  Organs: Tender.  I'm exhausted from lack of recuperation, but also mentally, from the automatic conditioning that has set in;  the rapid-fire assessment I make two minutes from wake-up time.  I know the day is going to be a battle and my brain wages war to stay home for an hour or two more.

Eventually I unfurl my spine and muster the bravery to place my feet on the floor.  Morning stiffness and swelling is normal. For the rest of the day, continual movement is paramount, otherwise, my joints will stay stuck in motionless positions.  I still don't know how to describe many of the symptoms that come with this condition.  The best one yet, which I don't know if the average person can understand, is that it feels like my blood doesn't fit inside its veins and my limbs don't fit inside it's skin encasing.  The most recent pain is my lower back.  The doctor said there is no damage.  "It's just inflammation."  I doubt the words of that arrogant fool, but I'm also helpless in my limited amount of time to take off work and see every doctor for every spot on my body that's wrong.

My excitement for the Perk was because I had run out of them.  The physician switched me to Vicodin, a very unpleasant substitute which reduces pain, adds headaches, has angered my autoimmune and takes my literal breath away.  This cannot continue.

For that reason, finding a lost little Percocet made my next 4-6 hours.  However, the concern simmers within. It won't be long before it wears off and no more rogue pills will be laying around to be found.

This is not the most unbearable pain I've ever experienced, but it's the most ongoing pain I've ever  had to deal with.  I'm not sure how to do it and when the big picture spans out before my eyes, out of focus and blurry, panic begins to stir.

Am I becoming dependent on a short-term solution?

Am I falling trap to a cognitive dissonance that justifies pill popping. Even if its prescribed?

What constitutes the right to pain killers?

What if you need them to keep your job?

What is the deal with organic herbs that ease pain without causing systematic damage like synthetic narcotics? Why don't I live in California or Amsterdam?

When will they build a Whole Foods in my neighborhood?

How do I keep my job and my home from being neglected in my condition?

How am I to reduce to a more manageable part-time, if I need to pay for so many medicines, appointments, and tests? How am I supposed to keep my mental peace when its at war with my body?

How am I going to do my part as a capable housewife if I run out of energy too early on the same day that my beloved cat decides to poop on our mattress and pee on all our spare mattresses?

What if  I don't stop asking all these unanswerable questions and die right here of cardiac arrest?

All these questions ruminate above in my head with great insistence.

They tumble inside my brain like a dryer with damp laundry all they want, but none of it is solvable if i don't stop the cycling.  Stress exacerbates fatigue, pains, and surrender.  Action however, gets the job done.

I'm a big believer of a mini-break down. If you fight it too long, you're have a certified melt-down and that's just too inconvenient for everyone.  After you're done crying and venting to a friend/family member who provides you a less morbid solution than resorting to admitting yourself in an insane asylum, you wait for your blotchy skin to normalize, you assume rhythmic breathing, you decrease your voice's pitch from supersonic back to human, send a quick prayer through the proper channels, and you lay out your plan.

As soon as your vision isn't blurred,  you call all your doctors with reasonable inquiries and requests.  Then you research on acupuncture and and natural therapies because your doctor is bound to take guesses as good as a two-year old.  You buy a box of pinch-proof gloves and an enzyme cleaner for unpleasant odors.  You put aside any feminism and ask Husband for suggestions and to kindly pass the vacuum once a week for you (He won't know if you don't ask).  Draw smiley faces on the bills you don't intend to pay.  Powder your face again if warranted.  Thank your friends for letting you be at your worst with them and still letting you maintain your credibility when the show is over.

[caption id="" align="alignright" width="210" caption="Ages 4-7"][/caption]

You also learn to prepare better for next time. It's time to invest in the sponge bat I've been suggesting might be the greatest problem solver in the world.

I especially like this one with the adjustable size for the days my symptoms throw me on the couch and the cats start meowing suspiciously.

                                                                                                                                                                                                                                                                                                                                                                                                                                                  Pain killers are a temporary solution. Being in turmoil is inevitable but should always be dealt with.  Being overwhelmed doesn't have to be the dirty little secret many sweep under the ground as if this life was a summer breeze.  Take meds if you must, but learn how to get on by your own terms. That alone is like natural opiates.

 


 


And that's the way Sue C's it. *



*High-five, Glee Geeks!

Ands, Ifs, and Butts.

My aim is to post every day. Something new and interesting; and realistically, sometimes boring and incoherent. And it would even make sense if I chose to adhere only to business days, excluding the weekends.  I reckon there might even come a time where I can't post for a week or so because that's life in all its realistic glory.  But as I've mentioned before, I do work full time, have a home to keep up, and I do have a crippling disease*.

*This is me: milkin it.

Being chronically ill, I get get-out-of-jail free cards.  As exciting as being in prison might (free cable, free meals, free health care, free college education), no one wants to have to need the freebie cards (except narcissists, and that's a topic for a day of exceptionally high tolerance).  I would give my arm tit to have my health back, but as long as I have a debilitating tribulation in front of me, behind me, and nagging all around me, I'm going to find - not the positive aspects (I think it's unnatural and cheap cognitive dissonance to say there is anything positive about having an illness)- but the 'beneficial' aspects.  The pros.  Because there are some.

This weekend, I had a few epiphanous moments where I realized I have a new power.   It could be used for the sheer goodness of truth.  Or for a very practical evil. Mwahahaha.

Yes, there will be plenty of exaggeration and exploiting of delicate situations here. Don't get soft of me.

And just cause I don't look sick, doesn't mean I'm not feeling bad, so if you ever catch yourself wondering if I'm really experiencing shortness of breath or  jumping on a trampoline while you phone me on the celly, you'll just have to take my word for it.  But how will you ever know? You just won't. Insert mischievous grin here.

(All characters appearing in this work are fictitious. The purpose of this piece is solely to entertain.  Any resemblance to real persons, living or dead, is purely coincidental.)

-To the Florida Department of Highway Safety and Motor Vehicles who dispenses handicapped parking.  (I don't know if I'm eligible but I really want one.):

"The doctor said my knees need maximized rest or it'll aggravate the inflammation."  Whispering to self, "And the closer I park to Sephora, the more chances I have of cleaning them out of their limited edition color pallets."

-To friends on theme nights:

"I would love to dress up as Chewbacca to complete your cast, but to be honest, that nylon material will break me out in hives."

-The invitees who want you to bring that signature dish that you can't even eat:

"Nothing will make me more happy than bringing that 14-layer-dip that I always slave over for your parties, but I don't know what's up with the weather because my knuckles are like glass today."

-To the ones who are STILL freakishly enthusiastic about the Electric Slide:

"No excitement allowed. Doctor's orders."

-Another purse,  jewelry, or tupperware party:

"I'm pretty sure I'm severely allergic to (cows)(precious stones)(colorful lids)(pick your own, be creative).  It's best to be preventative."

-When volunteers are called to help with after-event cleaning (this exception is actually increasingly true):

"All my limbs are on fire right now, but I will be more than glad to help you supervise the other laborers to make sure they're not slacking!"

-To the bar buddies who insist you race them at Irish Car Bombs:

"It's just be embarrassing for me to smoke you.  Anyway, I ended up in the hospital last time I beat the record."

-To bosses expecting you to be highly ambitious about raising the bar, no matter what pay grade:

"Brain Fog. Go ahead, check WebMD."

- To the husband:

Oh honey, not tonight. My hips are feeling a bit wonky.  (I was talking about moving the furniture around. Get your head out of the gutter!)

The truth of the matter is, I'm exhausted and have been longing bedtime since the moment my alarm blasted my eardrum off this morning.  I'm not a victim, we all have nights where we don't regenerate new brain cells.  Thankfully, I had enough stamina to make dinner and for this I am grateful, because a lack of preparation when avoiding gluten means I had rice cakes for lunch.  It was either that, or zonking out at my desk.  Husband is back in town and probably more depleted than I am, but he's helping with the cat litter, and other things that I would usually prefer to take care of, so he is Prince Charming tonight.

In regards to blogging, I've had a lot of scattered ideas and have saved many unfinished blog entries as drafts, hoping that my energy picks up sometime this week before its over, that I may wrap them up with a bow.  I had set out to write everyday because I truly do have many ideas, but damn this conflicting skeleton and its mushy contents, it's resisting.

Some entries in the making:

- More helpful books for a nice, chemical-free home for the women who hate to clean but still prioritize cleanliness (I wouldn't hate it if it didn't wipe me out.  It's quite the stress relief method).

-Two wonderful exercise regimes that will lift any butt and lengthen all arms for women who need to stay in line and hate exercise.  More importantly keep your blood flowing, brain active, and organs pumping.  (I miss the gym terribly but it is not an option right now, however, it is necessary find a way to move and claim body parts before gravity does.)

-How I feared becoming my Central American mother only to find that I absorbed many of her most useful (yet frightening) housewifing skills, extreme frugality, and basic recipes.  That has pretty much set the tone for me and Husband, aiding us in our beginning, my new-found food sensitivities, and the age old Mars vs. Venus dilemmas. It will include some of her recipes that have made dinnertime a delicious breeze. Mommas are amazing creatures. I will never be an amazing creature. Haha, Get it?

-Another page with detailed descriptions of the best blogs out there for a simpleton girl, trying to be a lady, a temptress, a savvy housewife, a friend, a sister, a little bit wiser and more accepting, more balanced, and just as ridiculous.

-The holistic treatment that is slowly, but surely helping me fight and control the wolf disease.

-One of my favorite cake recipes, modified. Because living without cake is not okay.

For tonight, I accept defeat and will use any remaining energies on tidying up the kitchen to a tolerable condition and get ready for early bed to make spoons.